Everyone’s experience of applying for any sort of benefit is different. For us it was awful, the process wasn’t too bad but we were completely new to this whole world and felt that this was out of our comfort zone.
Firstly, we didn’t want DLA, we wanted to continue as we were but soon started to realise there was some aspects of Delilah’s life that would be made easier if she had a DLA reward letter. Secondly, as Delilah was only 9 months old when we applied we found the application form very difficult. We jotted down quickly all the things we did for Delilah… the problem we had, unfortunately is that we did not write down our worst day, which was most day's at this point. We thought we were exaggerating and would remove parts but in fact, this was our life. We were non-stop up throughout the night, consistently making changes and already aware that Delilah was most likely not to walk. So I am sure you can imagine we weren’t surprised when we turned down and the application was rejected. We were ok with that, they were right - it was just like looking after a ‘normal’ baby we thought. We were wrong and so were they.
After a professional within Delilahs life at the time reminded us how important this award was, we appealed. The one bit of advice she gave us was to focus on your worst day because those days are the days when you are going to need that extra support. So we did just that. We won the appeal.
Winning the appeal wasn’t celebrated, it came with a sadness that washed over us. It was real, our youngest daughter will always be considered disabled and that was frightening. After a little while, this thought was pushed to the back of our minds and our focus was solely on Delilah and supporting her, trying to maintain some sort of normal life and raise all of our children.
Having DLA doesn’t offer you a life of rainbows, fortunes and sparkles, but it does open a lot of doors easier than if you were without it. So if you believe your child is entitled, please read the information below.
Please remember all information given here is a guide, it is here as a starting block in the hopes you will feel empowered to start your own research and get ahead before reaching crisis point as many of us do.
Who can apply?
Disability Living Allowance (DLA) for children may help with the extra costs of looking after a child who:
is under 16
has difficulties walking or needs much more looking after than a child of the same age who does not have a disability
They will need to meet all the eligibility requirements (below).
The DLA rate is between £23.60 and £151.40 a week and depends on the level of help the child needs.
You can apply for DLA if you are in and out of work.
Usually, to qualify for Disability Living Allowance (DLA) for children the child must:
be under 16 - anyone over 16 must apply for PIP
need extra looking after or have walking difficulties
be in Great Britain, a European Economic Area (EEA) country or Switzerland when you claim - there are some exceptions, such as family members of the Armed Forces
have lived in Great Britain for 2 of the last 3 years, if over 3 years old
be habitually resident in the UK, Ireland, Isle of Man or the Channel Islands
not be subject to immigration control
Children under 3
A child under 6 months must have lived in Great Britain for at least 13 weeks.
A child aged between 6 months and 3 years must have lived in Great Britain for at least 26 of the last 156 weeks.
The Child's Disability or Health Condition
The child’s disability or health condition must mean at least one of the following apply:
they need much more looking after than a child of the same age who does not have a disability
they have difficulty getting about
They must have had these difficulties for at least 3 months and expect them to last for at least 6 months. If they’re terminally ill (that is, not expected to live more than 6 months), they do not need to have had these difficulties for 3 months.
The rate the child gets depends on the level of looking after they need, for example:
lowest rate - help for some of the day
middle rate - frequent help or constant supervision during the day, supervision at night or someone to help while they’re on dialysis
highest rate - help or supervision throughout both day and night, or they’re terminally ill
The rate the child gets depends on the level of help they need getting about, for example:
lowest rate - they can walk but need help and or supervision when outdoors
highest rate - they cannot walk, can only walk a short distance without severe discomfort, could become very ill if they try to walk or they’re blind, severely sight impaired
Change Of Circumstances
Contact the Disability Service Centre as soon as the child’s circumstances change. This can affect how much they get, for example if their disability gets worse or they go abroad for medical treatment.
Their DLA will not usually be affected if they go:
into a local authority care home for less than 28 days
into a hospital
abroad for less than 13 weeks
abroad for less than 26 weeks to get medical treatment for a condition which began before they left
DLA Rates For Children
Disability Living Allowance for children is a tax-free benefit made up of two parts. Your child may qualify for one of both of these.
Care Component Weekly Rates
Lowest - £23.60
Middle - £59.70
Highest - £89.15
Mobility Component Weekly Rates
Lower - £23.60
Higher - £62.25
This payment is paid directly to your choice of account every four weeks on a Tuesday.
You may also be entitled to carers allowance Click Here for more info.
For more information from the .Gov website, including How to Apply - please click the button below...